S4-20 – Leveraging Patient Voice and Needs in the NASH Community

S4-20 - Leveraging Patient Voice and Needs in the NASH Community
In an honest discussion with Donna Cryer, Surfing NASH explores the challenges of championing patient-centricity and the importance of allied health as many impending and important decisions come to a head for the NAFLD/NASH community. Among other topics, the panelists comment on the recent draft report from ICER, the landscape of nomenclature consensus and, generally, how to absorb different perspectives into a common discussion while giving each the weight that they deserve.

This week, Donna Cryer (Global Liver Institute) joins Jörn Schattenberg, Louise Campbell and Roger Green for an impassioned and sobering episode which weighs the complexities of competing needs across all Fatty Liver stakeholders.

00:00 Introduction

07:40 Who is going to be the Larry Kramer of NASH?

17:38 Allied Health for Patient Empowerment

26:59 Generating Data to Demonstrate Patient Needs and Inform Public Health

36:55 Donna’s Call to Action

42:37 Can we absorb enough different perspectives into a common discussion and give them each the weight they deserve?

This powerful and at times emotional session expands recent discourse on the ICER draft report to also consider a developing landscape around nomenclature consensus and other important and impending decisions. Critically, the group grapples with challenges associated with honoring the precedence of fighting Fatty Liver through patient-centricity. Among this rich and tremendously honest discussion are the following themes:

00:00 Introduction

07:40 Who is going to be the Larry Kramer of NASH?

17:38 Allied Health for Patient Empowerment

26:59 Generating Data to Demonstrate Patient Needs and Inform Public Health

36:55 Donna’s Call to Action

42:37 Can we absorb enough different perspectives into a common discussion and give them each the weight they deserve?

Listen to the full feature to engage with the many insightful moments. If you enjoy the episode, have questions or interest around patient advocacy, allied health and Fatty Liver disease, we kindly ask that you submit reviews wherever you download the discourse. Alternatively, you can write to us directly at questions@SurfingNASH.com.

Stay Safe and Surf On!

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Sponsoring partnerships with SurfingMASH present a multifaceted avenue for companies seeking to amplify their brand presence and engage with targeted audiences.