S4-19.1 – How Did the Patient Advocates Come to Offer Testimonies?

S4-19.1 - How Did the Patient Advocates Come to Offer Testimonies?
Patient advocates and friends of the podcast Mike Betel (Fatty Liver Alliance), Tony Villiotti (NASHkNOWledge) and Wayne Eskridge (Fatty Liver Foundation) join co-hosts Louise Campbell and Roger Green to share a range of impressions on a public comments session around the draft report released by the Institute for Clinical and Economic Review (ICER) on resmetirom and obeticholic acid for NASH. This opening conversation reveals how each guest became involved in the process and offers a preview of their reactions to the experience.

SurfingNASH revisits the draft report from the Institute for Clinical and Economic Review (ICER) on resmetirom and obeticholic acid for NASH with patient advocates and friends of the podcast Mike Betel (Fatty Liver Alliance), Tony Villiotti (NASHkNOWledge) and Wayne Eskridge (Fatty Liver Foundation).

Roger Green leads this conversation by asking the panelists how each became involved in the process of a public comments session. Both Wayne and Tony disclose that they have previously worked with ICER through different interviews and seamlessly discovered the opportunity to speak on this occasion as a patient advocate. Wayne subsequently invited Mike to deliver a testimony as well. Next, Roger provides a soft introduction which teases the group to consider their feelings about the document and why each chose to comment on the items in which they noted in their testimonies. Similar to the reactions on our first episode on the Draft Report, it immediately becomes clear that the patient advocates also hold reservations regarding a number of different aspects that comprise the document. On one positive note, Tony commends ICER’s willingness to engage with the patient advocate community on a certain level.

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