S3-E38.8 – From the Vault: Discussing Patient Empowerment at INCBCN 2022

S3-E38.8 - From the Vault: Discussing Patient Empowerment at INCBCN 2022
From May of this year, INCBCN 2022 co-chair Jeff Lazarus joins the Surfers (including co-chair Jörn Schattenberg) to discuss the recent conference in Barcelona. This conversation asks what "patient empowerment" means to Fatty Liver stakeholders.

Our week of “Greatest Hits” episodes from the vault concludes with this conversation from the episode discussing the inaugural Innovations in Clinical Care – Barcelona (or INCBCN) conference that convened this past May. This conversation reviews two controversies about the meaning of patient empowerment that arose at the conference.

One key event that 2022 witnessed was the inception of the Innovations in NAFLD Care series, a global effort to discuss clinical care pathways and patient treatment processes in a systematic way. Surfing the NASH Tsunami is a media partner and advocate for this series.

This conversation comes from our review of the conference. The discussion itself is triggered by Roger Green’s question about controversies at INCBCN 2022 and addresses two issues. The first is the ongoing controversy over what to call the disease itself and the second addressed the concept of biohacking, which either empowers patients by providing them with extensive data for self-management or disempowers them by divorcing the individual patient’s interpretation of this data from disease understanding.

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